Caregiving Resources: A List Compiled by Grace Church Pastoral Care Leadership Team

CAREGIVING RESOURCES


“Therefore encourage one another and build each other up, just as in fact you are doing.”—1 Thessalonians 5:11

MOVIES


“Still Alice”
A linguistics professor and her family find their bonds tested when she is diagnosed with Alzheimer's Disease.

“Away from Her”
A man coping with the institutionalization of his wife because of Alzheimer's disease faces an epiphany when she transfers her affections to another man, Aubrey, a wheelchair-bound mute who also is a patient at the nursing home.
Director: Sarah Polley

“Breathe”
The inspiring true love story of Robin and Diana Cavendish, an adventurous couple who refuse to give up in the face of a devastating disease. A heartwarming celebration of human possibility.
Director: Andy Serkis

“Mask”

 A teenager with a massive facial skull deformity and biker gang mother attempt to live as normal a life as possible under the circumstances.

“We Were Here”
A deep and reflective look at the arrival and impact of AIDS in San Francisco and how individuals rose to the occasion during the first years of this unimaginable crisis.
DirectorsDavid WeissmanBill Weber | 

BOOKS


Local Authors:

Summoned by a Stroke: An Homage to Love, Relationship, and Living Life Fully by Judy Friesem (2020)

Mike and Me: An Inspiring Guide for Couples Who Choose to Face Alzheimer’s at Home Together by Rosalys Peel (2018)

Be Brave: A Wife’s Journey Through Caregiving by Florrie Munat  (2017)

Remember I Can’t Remember by Eric and Heather Andersen 

Other Authors:

Year of Magical Thinking – Joan Didion  (2007)

Books about Alzheimer’s disease: https://alzauthors.com/

Prayers for Caregivers – Patti Normile (2014)

May I Walk You Home? Courage and Comfort for Caregivers of the Very Ill  by Joyce Hutchinson & Joyce Rupp (2009)

That Good Night: Life and Medicine in the Eleventh Hour by Sunita Puri (2019)

Caregiving: The Spiritual Journey of Love, Loss and Renewal by Beth Witrogen McLeod (2000)

Being Mortal: Medicine and What Matters in the End by Atul Gawande  (2017)

The Gifts of the Body by Rebecca Brown (1995)

Knocking on Heaven’s Door: The Path to a Better Way of Death by Katy Butler (2014)
An Unintended Journey: A Caregiver’s Guide to Dementia by Janet Yagoda Shagam (2013)

A Better Way of Dying: How to Make the Best Choices at the End of Life by Jeanne Fitzpatrick MD & Eileen M. Fitzpatrick JD

The 36 Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease, Other Dementias, and Memory Loss by Nancy Mace MA & Peter V. Rabins MD, MPH (2017, 6th edition)

Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers by Jolene Brackey (5th ed. 2016)


Life Gets Better: The Unexpected Pleasures of Growing Older by Wendy Lustbader  (2011)


Loving Someone Who Has Dementia: How to Find Hope While Dealing with Stress and Grief by Pauline Boss (2011)
                                                                                    
 Articles:
“A New Page in O’Connor’s Love Story” by Joan Biskupic. About Sandra Day O’Connor’s husband’s Alzheimer’s.  https://abcnews.go.com  (politics)
Music:
“Graceful Passages: A Companion for Living & Dying” (CD) compiled by Gary Remal Malkan
PODCASTS

Kate Bowler “Everything Happens” 

NATIONAL ORGANIZATIONS


National Alliance for Caregiving
A leading national resource on family caregiving. Their purpose is to improve the quality of life for families and care recipients. The NAC is a non-profit coalition of more than forty national organizations focusing on family caregiving.

Family Caregiver Alliance
FCA is a public voice for caregivers and has developed a wide array of services and publications based on caregiver needs. Programs offered on local, state, and national levels.

Eldercare Locator
A public service of the U.S. Administration on Aging for older adults and their families, providing links to community services and resources. Search by topic or by region. Or call: 1-800-677-1116.
Assisted Living Guide
Provides comprehensive information on topics such as: available care options, financial support, and free resources that are available in each state.

LOCAL RESOURCES AND CONTACTS


Katie Auger – Community Resources Navigator for Bainbridge Island Senior Center and Island Volunteer Caregivers (IVC). Will meet with individuals and families to discuss area resources and find solutions.  Contact: katie@ivcbainbridge.org

Kitsap Aging and Long Term Care Services: Great hub for caregiver support services, located in Port Orchard 
1-360-335-5700  and  1-800-562-6418

BIRD (Bainbridge Island Resource Directory) https://resourcedirectorybi.org/
Hundreds of local resources for seniors, youth & families. Collaborating organizations: BI Senior/Community Center, Island Volunteer Caregivers, Helpline House, Housing Resources Bainbridge, KiDiMu, Kitsap Regional Library, Peacock Family Services

Dana Gargas – Regional Long-Term Care Ombudsman for Kitsap County
360-337-5714 and 1-800-562-6418 email: dgargus@co.kitsap.wa.us.
The ombudsman represents individuals and families in interactions with providers of long-term care. Dana coordinates a staff of 20 volunteers who can provide guidance on how to navigate long-term care options and respond to concerns about how people are being treated.
Podcast with Dana Gargas on What’s Up Bainbridge: 

VIRTUAL CAREGIVER SUPPORT GROUP


VIRTUAL CAREGIVER FORUMS
10 - 11 a.m. every Monday in July (July 6, 13, 20, 27). Come together with other family caregivers to discuss caring for a loved one in this time of COVID-19. Make meaningful connections, offer mutual support, and discover strategies that work for others. Facilitated by clinic social worker Karen Clay. Space is limited to 20 participants; sign up by the day before. Join for just one session, or multiple. 
For more information, contact Marigrace Becker, 206-744-2190, mbecker1@uw.edu

Sponsored by UW Medicine Memory & Brain Wellness Center

SUPPORT GROUPS 

IVC (Island Volunteer Caregivers) Support Groups

Island Volunteer Caregivers currently offers two support groups-a Caregivers Support Group and Grief Support Group. Support Groups provide safe spaces where people can share their feelings and thoughts in a confidential and non-judgmental setting.
The Caregivers’ Support Group meets every Tuesday from 2:00 pm to 3:30 at Rolling Bay Presbyterian Church. It is open to anyone who is caring for a loved one who is ill.  Karen Carson facilitates this and can be contacted at karenhoerrcarson@gmail.com.
For more information, please contact Robin Gaphni at IVC-206-842-4441 or robin@ivcbainbridge.org

Compiled by Grace Episcopal Church Pastoral Care Leadership Team
September 2020

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